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Oplossing in het verschiet voor lymfeoedeem ?

dinsdag, 3 oktober 2017

Ik had een afgelopen week afspraak bij mijn huisarts. Voor een verwijzing naar het ziekenhuis in Maastricht.
Een digitaal borstkankervriendinnetje van mij heeft al jaren te kampen, net als ik met lymfoedeem in haar arm. Vorig jaar heeft zij de stoute schoenen aangetrokken en heeft zich laten verwijzen naar het UMC in Maastricht.een plastisch chirurge behandelt daar patiënten met lymfoedeem middels super microchirurgie. Ze maken eerst een scan om te kijken of en waar de lymfe-afvloed stagneert en indien zinvol bevonden, worden er via een kleine operatie aders aangesloten op lymfevaten, in de veronderstelling dat op die manier de lymfeafvloed verbetert. Zij is er nu bijna een jaar verder nog helemaal blij mee. De armkous is zo goed als verleden tijd, ze kan met haar arm bloot leven en haar pijnklachten zijn zo goed als verdwenen.  Eerst heb ik het verhaal een tijdje gevolgd omdat ik uiteraard wilde kijken hoe het haar verging. Nu heb ik zelf een afspraak gemaakt om me te laten verwijzen.

Een stukje historie: in maart 2013 heb ik een reductie operatie ondergaan in ziekenhuis Nij Smellinghe in Drachten, het centrum voor operatieve behandeling van lymfeoedeem. Ik was nummer 200 of zo in Nederland die haar arm liet opereren. Van een dikke arm naar een dunne arm, 2,5 liter lichter. Van tevoren wist ik dat ik levenslang een armkous en handkous moest dragen. Toch baal ik meer en meer van mijn dikke hand, hij doet ook pijn en bij tijd en wijle wil ik mijn kous in de hoek gooien. Het is steeds het duivelse dilemma: kous aan want het is goed voor mijn arm, maar oh zo slecht voor mijn hand. Die stuwt op, wordt dik en doet pijn.

Ik hoop vurig dat ze in Maastricht mogelijk ook een oplossing daarvoor hebben, al zal dat niet meevallen. Een mooie hand is verleden tijd, daar reken ik niet meer op. Maar als is het maar een beetje beter dan dat het nu is. Kan ik maar iets langer die handkous af, al is het maar tijdens een feestje of zo. De armkous kan ik nog wel een beetje verbloemen, maar die handkous is er altijd, altijd in het zicht, en altijd daar. 24 uur, 7 dagen per week. Niet geschoten is altijd mis, dus hopelijk reis ik binnenkort af naar het zuiden. Om te horen wat ze eventueel zouden kunnen betekenen.

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wat spannend Marieke ik hoop zo dat jij hier ook baat bij zult hebben!

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